Nearly 43 percent of BMT centers did not develop their own educational resources in a non-English language

Description #

Nearly 43% of BMT-center respondents indicated that their center did not develop its own educational resources in a language other than English. Among the centers that did develop their own non-English educational resources, about 27% did so in Spanish. This documents limited in-house translated-materials capacity, concentrated in Spanish where it exists.

"Nearly 43% of respondents indicated that their TC did not develop its own educational resources in a language other than English. From respondents that indicated that their centers developed its own educational resources, about 27% did so in Spanish." (Idossa, 2019, p. 1034)

Methods Context #

What? #ⓘ

The observable: whether the transplant center developed its own patient-education resources in languages other than English, and in which languages.

"Language access services currently provided currently ... Translations of information on transplant, finances, consent forms, survivorship" (Idossa, 2019, p. 1032, Fig. 1)

How? #ⓘ

A national cross-sectional, web-based survey of transplant-center staff, with a domain on the language access services currently provided by the center.

"This cross-sectional, web-based survey was comprised of 30 items within five domains (Fig. 1): ... (3) language access services currently provided by TCs." (Idossa, 2019, p. 1032)

Who? #ⓘ

The 82 transplant-center-staff respondents (59% response rate), predominantly social workers, across all U.S. census regions.

"The survey yielded a 59% response rate (N = 82). Most respondents were social workers (76%)." (Idossa, 2019, p. 1033)

Other Notes #

The Discussion notes that smaller, resource-limited centers "must rely on external advocacy organizations" to provide culturally and linguistically appropriate services (Idossa, 2019, p. 1036).

Caveats #

• Cross-sectional TC-staff survey (59 percent response) underrepresents small-volume centers and non-social-worker roles with high item missingness The estimates come from a cross-sectional web-based survey with a 59% response rate in which not every transplant center provided input; patient educators/advocates and transplant coordinators were poorly represented (respondents were overwhelmingly social workers), and small-volume centers (fewer than 100 BMTs/year) were underrepresented relative to medium and large centers. In addition, many items carried a relatively high percentage of missing responses (e.g., 16.5–22.8% missing on Table 3 items), which the authors attribute to respondents not knowing or the item not applying. Together these features limit the representativeness and precision of the reported frequencies of needs and barriers.